When Ryan Marquiss was born with his heart outside of his body, doctors didn’t expect him to survive. It is an incredibly rare condition and usually babies are stillborn or die within three days.
His
heart also hadn’t developed and so he only had half a heart - a
combination of defects which is so rare that Ryan is the only one of his
kind in the world.
He
underwent more than a dozen operations over the next two years. He had
operations to replumb his heart so that the half a heart would do the
job of a full size heart. Doctors also put tissue expanders under his
skin to produce more skin so they could use it to cover his exposed
heart.
‘He just kept on fighting. He refused to die, and he kept on proving everyone wrong.
Mrs Marquiss said: ‘He really is a medical miracle. When I look at him running around the playground and playing on the climbing wall, I praise God. Every day with Ryan is one we were told we wouldn’t have. So we cherish each moment.’
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